AD, Patient & Community Liaison, SMA - Remote

Job Description Summary

Job Description

Key Responsibilities:

• Deliver accurate and empathetic information about disease progression, symptoms, and unmet needs for patients and caregivers.
• Empower patients and caregivers with knowledge and tools to navigate their SMA journey.
• Educate patients and caregivers about the benefits, proper use, and potential side effects of the brand product(s), ensuring adherence to company-approved materials and guidelines. Provide resources and education on treatment expectations.
• There are several local chapters throughout the country. The PCL will also develop relationships with local advocacy chapter leads.
• The PCL will attend events throughout the country by hosting the Novartis table, meeting with SMA families, answering questions and will deliver branded presentations. Majority of live events are held on weekends.
• Provide insights/learnings to Advocacy, Marketing, NPS and Market Access teams to help support development of educational materials, presentations, and resources to support patient and caregiver understanding. Identify gaps in patient and caregiver knowledge and provide recommendations for improving educational content.
• Adhere to all regulatory and compliance standards related to patient and product education, inclusive of Adverse Events training and reporting. Document interactions and feedback from patients and caregivers to improve the education program and support outcomes tracking.
• Contribute and participate in required internal and business reviews; may include preparation of meeting materials. Contribute and participate in functional planning (eg. tactical plan, budget, etc.)
• Maintain working knowledge of required platforms and processes (eg. Concur, Centris, FUSE, etc.). Maintain high scientific and current knowledge about responsible products and therapeutic area. Ensure compliance with all NVS policies and guidance including Code of Conduct and all applicable laws and regulations.
• Contribute to the onboarding and mentoring of new team members.

Essential Requirements:

• Education: Bachelor's degree in healthcare (i.e. social work, genetic counseling) education, or a related field
• Minimum of 3-5 years of experience in patient education, pharmaceutical, or healthcare support roles
• Experience in gene therapy and rare disease
• Exceptional communication and interpersonal skills, with the ability to connect with diverse populations. Ability to present complex information in an empathetic, clear, and engaging manner. Experience delivering presentations in front of a live audience.
• Experience working within regulatory and compliance guidelines in the healthcare or pharmaceutical industries.
• Proficiency in using virtual tools for education (e.g., video conferencing, webinars). Ability to think creatively and conceptually
• Ability to lead, motivate, develop, and influence others. Strong teamwork and collaborative skills and mindset. Proven ability to work effectively in a matrixed environment
• Ability to travel 70% of time, with weekend travel required

Desirable Requirements:

• Bilingual Spanish speaking preferred

While Novartis does not require vaccination for COVID-19 or proof of a recent negative test result for COVID-19 at this time, employees working in customer-facing roles must adhere to and comply with customers' (such as hospitals, physician offices, etc.) credentialing guidelines, which may require vaccination. As required by applicable law, Novartis will consider requests for reasonable accommodation for those unable to be vaccinated. This requirement is subject to applicable state and local laws and may not be applicable to employees working in certain jurisdictions. Please send accommodation requests to Eh.occupationalhealth@novartis.com.

The salary for this position is expected to range between $145,600 and $270,400 per year. Your compensation will include a performance-based cash incentive and, depending on the level of the role, eligibility to be considered for annual equity awards. US-based eligible employees will receive a comprehensive benefits package that includes health, life and disability benefits, a 401(k) with company contribution and match, and a variety of other benefits. In addition, employees are eligible for a generous time off package including vacation, personal days, holidays and other leaves.

EEO Statement:

The Novartis Group of Companies are Equal Opportunity Employers. We do not discriminate in recruitment, hiring, training, promotion or other employment practices for reasons of race, color, religion, sex, national origin, age, sexual orientation, gender identity or expression, marital or veteran status, disability, or any other legally protected status.

Accessibility and reasonable accommodations

The Novartis Group of Companies are committed to working with and providing reasonable accommodation to individuals with disabilities. If, because of a medical condition or disability, you need a reasonable accommodation for any part of the application process, or to perform the essential functions of a position, please send an e-mail to us.reasonableaccommodations@novartis.com or call +1(877)395-2339 and let us know the nature of your request and your contact information. Please include the job requisition number in your message.

Salary Range

Skills Desired